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Clinical Care

Medical information for medical providers about the diagnosis, management and surveillance of individuals who have a pathogenic variant of the p97/valosin-containing protein gene.

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VCP disease is also known as


  • Multisystem proteinopathy-1 (MSP1) 

  • Inclusion body myopathy associated with Paget disease of bone and frontotemporal dementia (IBMPFD1) 

  • OMIM #167320 or ICD-11 Code 4A41.21

Additional Information

The contents of this page was reviewed by the Chief Scientific Officer of Cure VCP Disease based on information published in peer-reviewed medical journals.

If you are a clinician interested in joining our VCP Medical Network, please contact us.

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