Driving awareness through educational Campaigns

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PATIENT BROCHURE

Our organization publishes and distributes a free informational patient brochure for VCP Disease / IBMPDF.  Patients, advocates and medical care providers may request copies by clicking the below form.

2019 PATIENT

CONFERENCE

Our first VCP Disease / IBMPFD Conference April 12-13, 2019 at Washington University in St. Louis, Missouri was a success.  The videos, agenda, speaker bios are available.

PATIENT SUPPORT & RESOURCES

Visit our Support and Resources page to learn more about groups and information available.

VCP DISEASE INFORMATION FOR PROVIDERS

Dr. Virginia Kimonis, one of our medical advisers, maintains the most up to date information for medical care providers about VCP Disease / IBMPFD.

PATIENT REGISTRY

If you have been diagnosed with VCP Disease or IBMPDF, please register  with CoRDS here.  This is the single most valuable action you can take to drive research towards a treatment and cure.  

CONFERENCES

We set up booths at conferences so that we may reach doctors and bring awareness to our disease.

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EIN NO.: 82-4368871