Hi I am Darla 47 years old and 5th member of my family to be diagnosed with Md but the only one that has the specific VCP mutation.
I have lost my father, uncle, cousin and older brother all to MD.
I was first diagnosed 8 yrs ago with LGMD type 1b. My Dr was not to sure of that so after awhile decided to test me for the VCP and it came back that yes I did have IBMPFD.
I am married and live in Iowa with my husband, have 6 kids (ages 11-29) and a granddaughter who will be 1 6/2020.
I am wanting to know more about VCP and get to know others that are also living with this ailment.