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Join date: Nov 25, 2018
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Hi I am Darla 47 years old and 5th member of my family to be diagnosed with Md but the only one that has the specific VCP mutation.

I have lost my father, uncle, cousin and older brother all to MD.


I was first diagnosed 8 yrs ago with LGMD type 1b. My Dr was not to sure of that so after awhile decided to test me for the VCP and it came back that yes I did have IBMPFD.


I am married and live in Iowa with my husband, have 6 kids (ages 11-29) and a granddaughter who will be 1 6/2020.


I am wanting to know more about VCP and get to know others that are also living with this ailment.




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