Cure VCP Disease, Inc. was formed to drive efforts to cure diseases related to mutations of the Valosin Containing Protein gene. This includes the disease Inclusion Body Myopathy associated with Paget’s disease of bone and Frontotemporal Dementia (IBMPFD). The specific objectives of our organization are:
to provide global education and awareness of VCP diseases to doctors, researchers, industry, patients, caregivers and the general public;
to develop and maintain a global patient registry of VCP disease patients;
to develop and maintain a fundraising vehicle to support awareness and education efforts;
to collaborate with other global organizations and entities which are promoting a cure for diseases which have symptoms similar to VCP diseases;
to sponsor, host and/or participate in events and activities that promote efforts to cure VCP diseases.
Board of Directors
Medical Advisory Board
Our organization is advised by leading clinical and scientific researchers who are working tirelessly to understand the VCP gene mutation.