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Our Impact

Our work, fueled by our desire to find a cure, has the potential to transform the impossible into possible - for patients, their families, and our communities.

Our Outcomes

Scientific discoveries don’t happen overnight or without hard work, but our determination to find answers for patients with VCP disease motivates us to develop breakthrough partnerships and patient care techniques. Our key projects are prioritized to facilitate collaborations that enable progress toward a cure.

$1.2M
Funds
Raised
111
Global Patient
Registry
5
Patient & Scientific
Conferences
83%
Funds Allocated to Research & Patient Support
8,000
Views of VCP
Standard of Care
7
Scientific Research
Projects Funded
52
Patient Research
Visits Funded
70
Labs in 
Research Network

Patient Stories

Our patients are at the center of everything we do. Their determination and selfless drive to make life better for their families is inspiring as they battle this devastating disease.

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