MEDICAL BLOG | Cure VCP Disease

Nov 30, 2019
5 min

My Mom and FTD

Perhaps every son thinks his mother is deserving of a “Best Mom” award. My sister and I certainly do! As a single mom, she ran the world: raising us, working...

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Cure VCP Disease, Inc.

Oct 4, 2019
1 min

VCP - The Gene Wears Many Hats

VCP not only causes many kinds of disease, it performs many cellular tasks. “It has probably close to a dozen defined cellular activities, and that likely is...

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Cure VCP Disease, Inc.

Sep 30, 2019
1 min

Study details symptoms of VCP disease in 231 individuals

VCP disease is a unique genetic disease. Originally termed Inclusion body myopathy with early-onset Paget disease and frontotemporal dementia (IBMPFD) since ...

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Cure VCP Disease, Inc.

Jun 18, 2019
1 min

VCP disease description now on MDA website

https://mailchi.mp/1485e97fe673/curevcpdiseasenewsletter17-217279

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Cure VCP Disease, Inc.

Jun 13, 2019
1 min

Contact your Senator for VCP funding

https://mailchi.mp/94bf140fc636/curevcpdiseasenewsletter18

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Cure VCP Disease, Inc.

May 16, 2019
1 min

Update on our request to Congress plus equipment update

https://mailchi.mp/493cbe7ffecb/curevcpdiseasenewsletter17

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Cure VCP Disease, Inc.

May 1, 2019
1 min

View the entire 2019 Patient & Caregiver Conference

https://mailchi.mp/271f8cf92a4e/newsletter01-200079

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Cure VCP Disease, Inc.

Apr 7, 2019
1 min

New Study identifies VCP as a central mediator.

Published in January 2019, the authors state, "Differentiated tissue is particularly vulnerable to alterations in protein and organelle homeostasis. ... To u...

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Cure VCP Disease, Inc.

Mar 21, 2019
1 min

Appropriations request submitted to Congress

https://mailchi.mp/b59d34ef8fcb/newsletter01-180511

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Cure VCP Disease, Inc.

Nov 9, 2018
1 min

Food for Thought

The Keto diet is all the rage for those trying to lose weight, but have you ever thought that it could help medically? This article written by Dr Gabriela S...

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Cure VCP Disease, Inc.

Sep 23, 2018
1 min

Protein Destroying Muscle, Bone, Nerves Parks on Mitochondria

“VCP-mediated disease would thus be, at least partially, the result of a traffic jam of dysfunctional mitochondria,” Luc Dupuis of the University of Strasb...

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Cure VCP Disease, Inc.

Jun 15, 2018
1 min

Feeling Tired? This study suggests that VCP Disease and your energy metabolism is to blame.

Mutations in valosin-containing protein (VCP) decrease ADP/ATP translocation across the mitochondrial membrane and impair energy metabolism in human neurons ...

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Cure VCP Disease, Inc.

Jun 15, 2018
1 min

Connection between IBMPFD and ALS

Mutations in the valosin-containing protein (VCP) gene were the first identified cause of IBMPFD,1,2 but reports of families without linkage to chromosome 9 ...

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Cure VCP Disease, Inc.

Jun 15, 2018
1 min

Single mutations in one gene rarely cause such different diseases . . .

New research gives insight into how single mutations in the VCP gene cause a range of neurological conditions including a form of dementia called Inclusion B...

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Cure VCP Disease, Inc.

Apr 24, 2018
1 min

Taking a Look at our History may Help us See a Future

In 2013, 190 individuals from 27 families with IBMPFD were studied by leading researches across the globe. Why? You may ask. Looking at our family histori...

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Cure VCP Disease, Inc.

Apr 24, 2018
1 min

sIBM and hereditary IBM are added to the growing list of TDP-43 positive inclusion diseases

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2586594/

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Cure VCP Disease, Inc.

Apr 14, 2018
1 min

VCP inhibitors relieve Mitofusin-dependent mitochondrial defects due to VCP disease mutants

For those looking for more details on what VCP inhibitors are and the research behind this possible cure, check out this link. This is from researchers at ...

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Cure VCP Disease, Inc.

Apr 14, 2018
1 min

Targets identified for developing therapies for IBMPFD

"Correcting the functions of these disease-associated proteins could lead to a safe treatment for IBMPFD and other fatal degenerative diseases," said Tsui-Fe...

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Cure VCP Disease, Inc.

Apr 14, 2018
1 min

The Role of Adenine Nucleotide Translocase

It an effort to promote recent studies related to IBMPFD, we are sharing part of the abstract from a recent study in the Journal of Biological Chemistry. Pu...

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Cure VCP Disease, Inc.

Apr 14, 2018
1 min

University of Miami Study finds possible link between ALS and IBMPFD

Michael Benatar, MD, PhD, of the University of Miami, studied the similarities between familial ALS and IBMPFD. He states on his website, " We have recently...

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