allison67802Apr 4, 20211 minOur Journey from Darkness to HopeCan't believe that we never shared this story on our blog. Allison Peck, co-founder of Cure VCP Disease, shared her story with Global...
Cure VCP Disease, Inc.Feb 24, 20213 minSara's StoryThis story was pulled from a December 2020 Facebook post and was too good not to share through our blog: Hi, I’m Sara and I have a...
Cure VCP Disease, Inc.Dec 9, 20201 minRefer your Doctor or Therapist to the VCP Medical NetworkWe need your help to identify all the doctors, practitioners and therapists who are currently treating VCP patients worldwide. You can...
Blog editorMay 19, 20205 minMy Beautiful Wife and VCP disease (FTD) Lovingly told by her devoted husband, Jerry B. Maria de los Angeles (Angie) C.B. was born in El Paso, Texas, in 1943. At the time of her...
Blog editorApr 29, 20205 minNew Resolutions in the Face of VCP Diseaseby Todd Warner As we celebrate another successful revolution around the Sun without perishing as a species (we do appear to be trying...
Blog editorApr 15, 20208 minVCP Disease and Meby Lindsey Campbell I remember, when I was very young, my grandmother would come pick me up from school and take me to her house. She...
Cure VCP Disease, Inc.Nov 30, 20195 minMy Mom and FTDPerhaps every son thinks his mother is deserving of a “Best Mom” award. My sister and I certainly do! As a single mom, she ran the world:...
Cure VCP Disease, Inc.Oct 4, 20191 minVCP - The Gene Wears Many HatsVCP not only causes many kinds of disease, it performs many cellular tasks. “It has probably close to a dozen defined cellular...
Cure VCP Disease, Inc.Sep 30, 20191 minStudy details symptoms of VCP disease in 231 individuals VCP disease is a unique genetic disease. Originally termed Inclusion body myopathy with early-onset Paget disease and frontotemporal...
Cure VCP Disease, Inc.Jun 18, 20191 minVCP disease description now on MDA websitehttps://mailchi.mp/1485e97fe673/curevcpdiseasenewsletter17-217279
Cure VCP Disease, Inc.Jun 13, 20191 minContact your Senator for VCP fundinghttps://mailchi.mp/94bf140fc636/curevcpdiseasenewsletter18
Cure VCP Disease, Inc.May 16, 20191 minUpdate on our request to Congress plus equipment updatehttps://mailchi.mp/493cbe7ffecb/curevcpdiseasenewsletter17
Cure VCP Disease, Inc.May 1, 20191 minView the entire 2019 Patient & Caregiver Conferencehttps://mailchi.mp/271f8cf92a4e/newsletter01-200079
Cure VCP Disease, Inc.Apr 7, 20191 minNew Study identifies VCP as a central mediator.Published in January 2019, the authors state, "Differentiated tissue is particularly vulnerable to alterations in protein and organelle...
Cure VCP Disease, Inc.Mar 21, 20191 minAppropriations request submitted to Congresshttps://mailchi.mp/b59d34ef8fcb/newsletter01-180511
Cure VCP Disease, Inc.Nov 9, 20181 minFood for ThoughtThe Keto diet is all the rage for those trying to lose weight, but have you ever thought that it could help medically? This article...
Cure VCP Disease, Inc.Sep 23, 20181 minProtein Destroying Muscle, Bone, Nerves Parks on Mitochondria“VCP-mediated disease would thus be, at least partially, the result of a traffic jam of dysfunctional mitochondria,” Luc Dupuis of the ...
Cure VCP Disease, Inc.Jun 15, 20181 minFeeling Tired? This study suggests that VCP Disease and your energy metabolism is to blame.Mutations in valosin-containing protein (VCP) decrease ADP/ATP translocation across the mitochondrial membrane and impair energy...
Cure VCP Disease, Inc.Jun 15, 20181 minConnection between IBMPFD and ALSMutations in the valosin-containing protein (VCP) gene were the first identified cause of IBMPFD,1,2 but reports of families without...
Cure VCP Disease, Inc.Jun 15, 20181 minSingle mutations in one gene rarely cause such different diseases . . . New research gives insight into how single mutations in the VCP gene cause a range of neurological conditions including a form of...