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large group of individuals

CZI Science in Society: Rare As One Network 2025 Meeting

1 day ago

Our participating teams raised over $62,000 during the 2025 I CAN MOVEment!

Our participating teams raised over $62,000 during the 2025 I CAN MOVEment!

A Successful 2025 I CAN MOVEment

7 days ago

group of individuals in blue shirts

group of individuals in blue shirts

From Genetic Testing to Advocacy: Renee’s Journey with Rare Disease

May 23

Your Guide to Genetic Counseling With InformedDNA

Your Guide to Genetic Counseling With InformedDNA

Your Guide to Genetic Counseling With InformedDNA

May 23

Photo of two board membes

Photo of two board membes

Welcome our New Board of Directors!

May 21

Powering Collaboration and Connections at Cure VCP Disease

Powering Collaboration and Connections at Cure VCP Disease

Powering Collaboration and Connections at Cure VCP Disease

May 9

VCP Genetic Counseling Program in Partnership with InformedDNA

VCP Genetic Counseling Program in Partnership with InformedDNA

VCP Genetic Counseling Program in Partnership with InformedDNA

Mar 4

group of people in front of a table

group of people in front of a table

A Journey to Support and Awareness

Feb 28

Announcing: A New Hope | Well-Being in Rare

Announcing: A New Hope | Well-Being in Rare

Announcing: A New Hope | Well-Being in Rare

Feb 25

Dr. Jordi Diaz-Manera

Dr. Jordi Diaz-Manera

Welcome Dr. Jordi Díaz-Manera to the Cure VCP Disease Medical Advisory Board

Feb 20

Meet Peter Shen, PhD

Meet Peter Shen, PhD

Meet Peter Shen, PhD

Feb 10

AFTD 2024 Educational Conference Recap

AFTD 2024 Educational Conference Recap

AFTD 2024 Educational Conference Recap

Feb 5

4YouandMe- A VCP Disease App & Wearable Study

4YouandMe- A VCP Disease App & Wearable Study

4YouandMe- A VCP Disease App & Wearable Study

Jan 7

Simplifying the Science: Cure VCP Disease's AI Podcast Translates Research for Everyone

Simplifying the Science: Cure VCP Disease's AI Podcast Translates Research for Everyone

Simplifying the Science: Cure VCP Disease's AI Podcast Translates Research for Everyone

Jan 3

Dedication in Action: How the Di Silvestro Family Inspires Engagement in VCP Research

Dedication in Action: How the Di Silvestro Family Inspires Engagement in VCP Research

Dedication in Action: How the Di Silvestro Family Inspires Engagement in VCP Research

Dec 30, 2024

Rooted in Gratitude, Growing Towards a Cure: Honoring Volunteer Jan Reimer

Rooted in Gratitude, Growing Towards a Cure: Honoring Volunteer Jan Reimer

Rooted in Gratitude, Growing Towards a Cure: Honoring Volunteer Jan Reimer

Dec 20, 2024

Introducing Dr. Zollie Yavarow: Our New Director of Scientific Engagement and Collaborations

Introducing Dr. Zollie Yavarow: Our New Director of Scientific Engagement and Collaborations

Introducing Dr. Zollie Yavarow: Our New Director of Scientific Engagement and Collaborations

Sep 11, 2024

BBQ, Brews & Bingo - 2024 Cure VCP Disease Celebration

BBQ, Brews & Bingo - 2024 Cure VCP Disease Celebration

BBQ, Brews & Bingo - 2024 Cure VCP Disease Celebration

Aug 14, 2024

Everything you need to know about the 2025 Cure VCP Disease Celebration

Everything you need to know about the 2025 Cure VCP Disease Celebration

Everything you need to know about the 2025 Cure VCP Disease Celebration

Jul 8, 2024

Living Life and Fighting for a Cure

Living Life and Fighting for a Cure

Living Life and Fighting for a Cure

Jun 27, 2024

Image by Sara Kurfeß

Image by Sara Kurfeß

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Cure VCP Disease, Inc.

1302 Watson Blvd. #1015

Warner Robins, GA 31093

EIN No: 82-4368871

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