Our Journey from Darkness to Hope
Can't believe that we never shared this story on our blog. Allison Peck, co-founder of Cure VCP Disease, shared her story with Global...
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- Feb 24, 2021
- 3 min
Sara's Story
This story was pulled from a December 2020 Facebook post and was too good not to share through our blog: Hi, I’m Sara and I have a...
118 views4 comments
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- Dec 9, 2020
- 1 min
Refer your Doctor or Therapist to the VCP Medical Network
We need your help to identify all the doctors, practitioners and therapists who are currently treating VCP patients worldwide. You can...
54 views2 comments
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- May 19, 2020
- 5 min
My Beautiful Wife and VCP disease (FTD)
Lovingly told by her devoted husband, Jerry B. Maria de los Angeles (Angie) C.B. was born in El Paso, Texas, in 1943. At the time of her...
778 views
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- Apr 29, 2020
- 5 min
New Resolutions in the Face of VCP Disease
by Todd Warner As we celebrate another successful revolution around the Sun without perishing as a species (we do appear to be trying...
169 views1 comment
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- Apr 15, 2020
- 8 min
VCP Disease and Me
by Lindsey Campbell I remember, when I was very young, my grandmother would come pick me up from school and take me to her house. She...
333 views2 comments
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- Nov 30, 2019
- 5 min
My Mom and FTD
Perhaps every son thinks his mother is deserving of a “Best Mom” award. My sister and I certainly do! As a single mom, she ran the world:...
467 views0 comments
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- Oct 4, 2019
- 1 min
VCP - The Gene Wears Many Hats
VCP not only causes many kinds of disease, it performs many cellular tasks. “It has probably close to a dozen defined cellular...
45 views0 comments
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- Sep 30, 2019
- 1 min
Study details symptoms of VCP disease in 231 individuals
VCP disease is a unique genetic disease. Originally termed Inclusion body myopathy with early-onset Paget disease and frontotemporal...
69 views0 comments
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- Jun 18, 2019
- 1 min
VCP disease description now on MDA website
https://mailchi.mp/1485e97fe673/curevcpdiseasenewsletter17-217279
32 views0 comments
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- Jun 13, 2019
- 1 min
Contact your Senator for VCP funding
https://mailchi.mp/94bf140fc636/curevcpdiseasenewsletter18
8 views0 comments
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- May 16, 2019
- 1 min
Update on our request to Congress plus equipment update
https://mailchi.mp/493cbe7ffecb/curevcpdiseasenewsletter17
8 views0 comments
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- May 1, 2019
- 1 min
View the entire 2019 Patient & Caregiver Conference
https://mailchi.mp/271f8cf92a4e/newsletter01-200079
28 views0 comments
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- Apr 7, 2019
- 1 min
New Study identifies VCP as a central mediator.
Published in January 2019, the authors state, "Differentiated tissue is particularly vulnerable to alterations in protein and organelle...
32 views0 comments
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- Mar 21, 2019
- 1 min
Appropriations request submitted to Congress
https://mailchi.mp/b59d34ef8fcb/newsletter01-180511
21 views0 comments
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- Nov 9, 2018
- 1 min
Food for Thought
The Keto diet is all the rage for those trying to lose weight, but have you ever thought that it could help medically? This article...
68 views0 comments
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- Sep 23, 2018
- 1 min
Protein Destroying Muscle, Bone, Nerves Parks on Mitochondria
“VCP-mediated disease would thus be, at least partially, the result of a traffic jam of dysfunctional mitochondria,” Luc Dupuis of the ...
34 views0 comments
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- Jun 15, 2018
- 1 min
Feeling Tired? This study suggests that VCP Disease and your energy metabolism is to blame.
Mutations in valosin-containing protein (VCP) decrease ADP/ATP translocation across the mitochondrial membrane and impair energy...
74 views0 comments
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- Jun 15, 2018
- 1 min
Connection between IBMPFD and ALS
Mutations in the valosin-containing protein (VCP) gene were the first identified cause of IBMPFD,1,2 but reports of families without...
39 views1 comment
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- Jun 15, 2018
- 1 min
Single mutations in one gene rarely cause such different diseases . . .
New research gives insight into how single mutations in the VCP gene cause a range of neurological conditions including a form of...
33 views1 comment