Cure VCP Disease, Inc.
Meet Todd Warner
My name is Todd Warner. I live in Oregon with my beautiful wife, Melissa. I used to know exactly who I was, what I wanted, and how to get...
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Cure VCP Disease, Inc.
- Sep 14
- 2 min
PRESS RELEASE: Cure VCP Disease & Genethon Partner to Advance VCP Gene Editing Program
Collaboration is first step in understanding if CRISPR-Cas technology can correct mutations in the VCP gene September 14, 2023, Warner...
37 views
allison67802
- Aug 26
- 2 min
Breaking Down Barriers through International VCP Scientific Convenings
As we gear up for our next VCP Scientific Conference at Caltech on Feb. 22-24, we wanted to take a moment to reflect on the remarkable...
14 views
Cure VCP Disease, Inc.
- Aug 1
- 6 min
Meet Virginia, VCP Disease Patient
"What would you do if you knew how long you had to live?" my neurologist asked me.
"Travel to Italy," I answered.
And then I did.
1,340 views
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- Jul 31
- 2 min
ENMC Workshop Addresses Remote Clinical Care and Outcomes Measurement for Neuromuscular Disorders
May 6, 2023 The European Neuromuscular Center (ENMC) held its 266th workshop on remote delivery of clinical care and remote clinical...
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- Jul 31
- 2 min
PRESS RELEASE: New Medical Recommendations for VCP Patients with Myopathy
May 5, 2023 We are thrilled to announce a publication in Annals of Clinical and Translational Neurology that offers provisional practice...
17 views
Cure VCP Disease, Inc.
- May 8
- 3 min
"We must not take for granted what our bodies CAN do NOW!"
I plan to ride my bike or walk each day (from this day forward) because I CAN... We must not take for granted what our bodies CAN do NOW!
34 views
Cure VCP Disease, Inc.
- Apr 24
- 3 min
"Not for tomorrow…but perhaps the day after!"
Hello, my name is Armelle, I don’t have VCP disease, but I fight for these patients every day. I have the honor and the luck to be the...
80 views
Cure VCP Disease, Inc.
- Mar 27
- 7 min
Reflections On A Life Well-Loved
On October 12, 2022, we lost our Father, Robert Andrew Morris. Let me share bits and pieces of our father’s life with you.
273 views
Cure VCP Disease, Inc.
- Mar 13
- 4 min
Ciao, my name is Serge DiSilvestro
Serge DiSilvestro is an Italian-born American citizen who immigrated to the United States with his family in 1960. Despite facing...
275 views
Cure VCP Disease, Inc.
- Feb 21
- 4 min
Hello, my name is Eduardo
Eduardo has been through a great deal of hardship due to VCP disease. This condition affects the muscles and causes weakness, which can...
339 views
allison67802
- Apr 4, 2021
- 1 min
Our Journey from Darkness to Hope
Can't believe that we never shared this story on our blog. Allison Peck, co-founder of Cure VCP Disease, shared her story with Global...
317 views
Cure VCP Disease, Inc.
- Feb 24, 2021
- 3 min
Sara's Story
This story was pulled from a December 2020 Facebook post and was too good not to share through our blog: Hi, I’m Sara and I have a...
165 views
Cure VCP Disease, Inc.
- Dec 9, 2020
- 1 min
Refer your Doctor or Therapist to the VCP Medical Network
We need your help to identify all the doctors, practitioners and therapists who are currently treating VCP patients worldwide. You can...
65 views
Blog editor
- May 19, 2020
- 5 min
My Beautiful Wife and VCP disease (FTD)
Lovingly told by her devoted husband, Jerry B. Maria de los Angeles (Angie) C.B. was born in El Paso, Texas, in 1943. At the time of her...
1,012 views
Blog editor
- Apr 29, 2020
- 5 min
New Resolutions in the Face of VCP Disease
by Todd Warner As we celebrate another successful revolution around the Sun without perishing as a species (we do appear to be trying...
183 views
Blog editor
- Apr 15, 2020
- 8 min
VCP Disease and Me
by Lindsey Campbell I remember, when I was very young, my grandmother would come pick me up from school and take me to her house. She...
354 views
Cure VCP Disease, Inc.
- Nov 30, 2019
- 5 min
My Mom and FTD
Perhaps every son thinks his mother is deserving of a “Best Mom” award. My sister and I certainly do! As a single mom, she ran the world:...
512 views
Cure VCP Disease, Inc.
- Oct 4, 2019
- 1 min
VCP - The Gene Wears Many Hats
VCP not only causes many kinds of disease, it performs many cellular tasks. “It has probably close to a dozen defined cellular...
55 views
Cure VCP Disease, Inc.
- Sep 30, 2019
- 1 min
Study details symptoms of VCP disease in 231 individuals
VCP disease is a unique genetic disease. Originally termed Inclusion body myopathy with early-onset Paget disease and frontotemporal...
80 views
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