Cure VCP Disease, Inc.
"We must not take for granted what our bodies CAN do NOW!"
I plan to ride my bike or walk each day (from this day forward) because I CAN... We must not take for granted what our bodies CAN do NOW!
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Cure VCP Disease, Inc.
- Apr 24
- 3 min
"Not for tomorrow…but perhaps the day after!"
Hello, my name is Armelle, I don’t have VCP disease, but I fight for these patients every day. I have the honor and the luck to be the...
53 views
Cure VCP Disease, Inc.
- Mar 27
- 7 min
Reflections On A Life Well-Loved
On October 12, 2022, we lost our Father, Robert Andrew Morris. Let me share bits and pieces of our father’s life with you.
247 views1 comment
Cure VCP Disease, Inc.
- Mar 13
- 4 min
Ciao, my name is Serge DiSilvestro
Serge DiSilvestro is an Italian-born American citizen who immigrated to the United States with his family in 1960. Despite facing...
261 views
Cure VCP Disease, Inc.
- Feb 21
- 4 min
Hello, my name is Eduardo
Eduardo has been through a great deal of hardship due to VCP disease. This condition affects the muscles and causes weakness, which can...
331 views
allison67802
- Apr 4, 2021
- 1 min
Our Journey from Darkness to Hope
Can't believe that we never shared this story on our blog. Allison Peck, co-founder of Cure VCP Disease, shared her story with Global...
308 views8 comments
Cure VCP Disease, Inc.
- Feb 24, 2021
- 3 min
Sara's Story
This story was pulled from a December 2020 Facebook post and was too good not to share through our blog: Hi, I’m Sara and I have a...
159 views4 comments
Cure VCP Disease, Inc.
- Dec 9, 2020
- 1 min
Refer your Doctor or Therapist to the VCP Medical Network
We need your help to identify all the doctors, practitioners and therapists who are currently treating VCP patients worldwide. You can...
63 views2 comments
Blog editor
- May 19, 2020
- 5 min
My Beautiful Wife and VCP disease (FTD)
Lovingly told by her devoted husband, Jerry B. Maria de los Angeles (Angie) C.B. was born in El Paso, Texas, in 1943. At the time of her...
983 views
Blog editor
- Apr 29, 2020
- 5 min
New Resolutions in the Face of VCP Disease
by Todd Warner As we celebrate another successful revolution around the Sun without perishing as a species (we do appear to be trying...
181 views1 comment
Blog editor
- Apr 15, 2020
- 8 min
VCP Disease and Me
by Lindsey Campbell I remember, when I was very young, my grandmother would come pick me up from school and take me to her house. She...
348 views2 comments
Cure VCP Disease, Inc.
- Nov 30, 2019
- 5 min
My Mom and FTD
Perhaps every son thinks his mother is deserving of a “Best Mom” award. My sister and I certainly do! As a single mom, she ran the world:...
509 views0 comments
Cure VCP Disease, Inc.
- Oct 4, 2019
- 1 min
VCP - The Gene Wears Many Hats
VCP not only causes many kinds of disease, it performs many cellular tasks. “It has probably close to a dozen defined cellular...
54 views0 comments
Cure VCP Disease, Inc.
- Sep 30, 2019
- 1 min
Study details symptoms of VCP disease in 231 individuals
VCP disease is a unique genetic disease. Originally termed Inclusion body myopathy with early-onset Paget disease and frontotemporal...
78 views0 comments
Cure VCP Disease, Inc.
- Jun 18, 2019
- 1 min
VCP disease description now on MDA website
https://mailchi.mp/1485e97fe673/curevcpdiseasenewsletter17-217279
34 views0 comments
Cure VCP Disease, Inc.
- Jun 13, 2019
- 1 min
Contact your Senator for VCP funding
https://mailchi.mp/94bf140fc636/curevcpdiseasenewsletter18
9 views0 comments
Cure VCP Disease, Inc.
- May 16, 2019
- 1 min
Update on our request to Congress plus equipment update
https://mailchi.mp/493cbe7ffecb/curevcpdiseasenewsletter17
9 views0 comments
Cure VCP Disease, Inc.
- May 1, 2019
- 1 min
View the entire 2019 Patient & Caregiver Conference
https://mailchi.mp/271f8cf92a4e/newsletter01-200079
37 views0 comments
Cure VCP Disease, Inc.
- Apr 7, 2019
- 1 min
New Study identifies VCP as a central mediator.
Published in January 2019, the authors state, "Differentiated tissue is particularly vulnerable to alterations in protein and organelle...
34 views0 comments
Cure VCP Disease, Inc.
- Mar 21, 2019
- 1 min
Appropriations request submitted to Congress
https://mailchi.mp/b59d34ef8fcb/newsletter01-180511
22 views0 comments
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