Love & Diagnosis: Facing VCP Disease TogetherMy name is Anna. My husband, Joe, was diagnosed with VCP disease in June 2023. Joe's athletic past is a stark contrast to his present...
Mountains Are Being Moved: A Lifetime of FriendshipsThis is an edited excerpt of Joe's speech at the 2023 Cure VCP Disease Celebration on August 12, 2023 in Atlanta, Georgia. We appreciate...
Meet Todd WarnerMy name is Todd Warner. I live in Oregon with my beautiful wife, Melissa. I used to know exactly who I was, what I wanted, and how to get...
Meet Virginia, VCP Disease Patient"What would you do if you knew how long you had to live?" my neurologist asked me. "Travel to Italy," I answered. And then I did.
Meet Katie CarterI'm Katie Carter. I have VCP disease. It is a rare neuromuscular disease that has impacted my family for generations. It affects me, and I c
Reflections On A Life Well-Loved On October 12, 2022, we lost our Father, Robert Andrew Morris. Let me share bits and pieces of our father’s life with you.
Ciao, my name is Serge Di SilvestroSerge Di Silvestro is an Italian-born American citizen who immigrated to the United States with his family in 1960. Despite facing...
Hello, my name is EduardoEduardo has been through a great deal of hardship due to VCP disease. This condition affects the muscles and causes weakness, which can...
