Living Life and Fighting for a CureI found Cure VCP Disease shortly after my diagnosis and I finally saw hope! It’s not going to be an easy road, but I am no longer alone.
Finding Hope in the Journey: My Battle with VCP DiseaseThe journey hasn't been easy, but I refuse to sit by and watch the rest of my life pass me by. The support of a community gives me hope.
Heartbreak to Solace: Finding Solidarity in the Cure VCP Disease Communityby Stacy Murray In 2003, I was five and a half months pregnant with my second child. My husband and I had just left a routine OB...
Facing a Difficult Reality-Joe’s StoryMy family, while deeply connected, has always been private about our struggles. We take care of each other fiercely, but rarely talk...
Love & Diagnosis: Facing VCP Disease TogetherMy name is Anna. My husband, Joe, was diagnosed with VCP disease in June 2023. Joe's athletic past is a stark contrast to his present...
Mountains Are Being Moved: A Lifetime of FriendshipsThis is an edited excerpt of Joe's speech at the 2023 Cure VCP Disease Celebration on August 12, 2023 in Atlanta, Georgia. We appreciate...
Meet Todd WarnerMy name is Todd Warner. I live in Oregon with my beautiful wife, Melissa. I used to know exactly who I was, what I wanted, and how to get...
Meet Virginia, VCP Disease Patient"What would you do if you knew how long you had to live?" my neurologist asked me. "Travel to Italy," I answered. And then I did.
Meet Katie CarterI'm Katie Carter. I have VCP disease. It is a rare neuromuscular disease that has impacted my family for generations. It affects me, and I c