We’re proud to feature, Tom and Tammy, whose courage and commitment to spread hope and help the rare disease community are truly inspiring.

When it comes to making an impact in the fight against VCP disease, it takes more than just hope—it takes action, commitment, and vision....

A special highlight on volunteer and patient family member, Jan Reimer.

I found Cure VCP Disease shortly after my diagnosis and I finally saw hope! It’s not going to be an easy road, but I am no longer alone.

The journey hasn't been easy, but I refuse to sit by and watch the rest of my life pass me by. The support of a community gives me hope.

by Stacy Murray In 2003, I was five and a half months pregnant with my second child. My husband and I had just left a routine OB...

My family, while deeply connected, has always been private about our struggles. We take care of each other fiercely, but rarely talk...

My name is Anna. My husband, Joe, was diagnosed with VCP disease in June 2023. Joe's athletic past is a stark contrast to his present...

This is an edited excerpt of Joe's speech at the 2023 Cure VCP Disease Celebration on August 12, 2023 in Atlanta, Georgia. We appreciate...