Patient and Family Events

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  Scientific Office Hours

  Thu, Jan 30

  https://us06web.zoom.us/meeting/register/9u

  Jan 30, 2025, 8:00 PM – 9:00 PM

  Jan 30, 2025, 8:00 PM – 9:00 PM

  This is your opportunity to ask questions about VCP gene variants, foster connections, and gain insight into current VCP research as well as our treatment development strategy. Gaining a deeper understanding of the science behind VCP can empower you and strengthen our collective drive toward a cure.

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  Multiple Dates

  Significant Other & Care Person Virtual Happy Hour

  Tue, Feb 04

  https://us06web.zoom.us/meeting/register/2M

  Feb 04, 2025, 8:00 PM – 9:00 PM

  Feb 04, 2025, 8:00 PM – 9:00 PM

  Significant Other & Care Partner Virtual Happy Hours are a welcoming space for anyone supporting a person with VCP disease. Connect with care partners & loved ones from around the world to share experiences, offer support, & explore the unique challenges & triumphs of being a care partner.

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  Multiple Dates

  Virtual Happy Hour

  Thu, Feb 20

  https://us06web.zoom.us/meeting/register/KA

  Feb 20, 2025, 8:00 PM – 9:00 PM EST

  Feb 20, 2025, 8:00 PM – 9:00 PM EST

  Join our monthly Cure VCP Disease Virtual Happy Hours—a welcoming space for our global community to connect and share life's challenges, tips, and triumphs related to this disease. There's no formal agenda and no drink required—just a friendly setting to learn from and support one another.

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  Cure VCP Disease Biobank Roadshow

  VARIOUS DATES

  VARIOUS LOCATIONS THROUGHOUT THE COUNTRY

  VARIOUS DATES

  VARIOUS DATES

  Help advance VCP research by participating in the VCP Biobank. More information about date and locations available in the interest form.

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