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Events

We host events for patients, families, and the research community. Additional information is available through our newsletters and social media.

Scientific Convenings

  • 2024 VCP International Scientific Conference
    2024 VCP International Scientific Conference
    Thu, Feb 22
    Pasadena
    Feb 22, 2024, 2:00 PM PST – Feb 25, 2024, 12:00 PM PST
    Pasadena, 96, California Institute of Technology, 360 S Wilson Ave, Pasadena, CA 91106, USA
    The conference will bring scientists, clinicians, and patient advocates together. https://www.curevcp.org/2024vcpinternationalconference
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Awareness and Fundraising Events

  • 2024 Tee Off For A Cure at TopGolf
    2024 Tee Off For A Cure at TopGolf
    Sun, Mar 10
    Alpharetta
    Mar 10, 2024, 11:45 AM PDT – Mar 11, 2024, 3:00 PM PDT
    Alpharetta, 10900 Westside Pkwy, Alpharetta, GA 30009, USA
    Join us for our inaugural Tee Off For a Cure fundraiser! The family-focused event brings together patients and supporters for a day of fun and friendly competition to advance 2024 research and patient initiatives. Every golfer will have a chance to win $10,000 in our hole-in-one contest!
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  • 2024 Cure VCP Disease Celebration
    2024 Cure VCP Disease Celebration
    Sat, Aug 10
    Fall Line Station
    Aug 10, 2024, 6:00 PM – 10:00 PM
    Fall Line Station, 567 Plum St, Macon, GA 31201, USA
    Join us for a BBQ, Brews & Bingo Benefit!
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Patient and Family Events

  • Scientific Office Hours
    Scientific Office Hours
    Multiple Dates
    Wed, Feb 28
    https://us06web.zoom.us/meeting/register/tZ
    Feb 28, 2024, 8:00 PM – 9:00 PM
    Feb 28, 2024, 8:00 PM – 9:00 PM
    Join Cure VCP Disease's Chief Scientific Officer Dr. Armelle Pindon for this informal time to ask any scientific questions related to VCP gene variants and associated diseases. Learning more about the science behind VCP can empower you and others in our drive for a cure. Knowledge is power!
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  • Virtual Happy Hour
    Virtual Happy Hour
    Multiple Dates
    Wed, Mar 13
    https://us06web.zoom.us/meeting/register/tZ
    Mar 13, 2024, 8:00 PM – 9:00 PM EDT
    Mar 13, 2024, 8:00 PM – 9:00 PM EDT
    Cure VCP Disease Virtual Happy Hours are a great opportunity for our VCP disease community, from around the world, to connect monthly with one another and share life's challenges, tips, and triumphs due to the impact of this disease. There is no agenda and no drink is required. We look forward to se
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  • Care Partner & Significant Other Happy Hour
    Care Partner & Significant Other Happy Hour
    Multiple Dates
    Tue, Mar 19
    https://us06web.zoom.us/meeting/register/tZ
    Mar 19, 2024, 8:00 PM – 9:00 PM EDT
    Mar 19, 2024, 8:00 PM – 9:00 PM EDT
    Inviting all significant others and care partners of VCP disease patients to this unique Virtual Happy Hour. Sharing your experiences and showing your support can rejuvenate and ground all affected by VCP disease. We are in this together! There is no agenda and no drink required.
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  • VCP Ambassadors Volunteer Meeting
    VCP Ambassadors Volunteer Meeting
    Multiple Dates
    Wed, Apr 03
    https://us06web.zoom.us/meeting/register/tZ
    Apr 03, 2024, 8:00 PM – 9:00 PM EDT
    Apr 03, 2024, 8:00 PM – 9:00 PM EDT
    Join us for our upcoming virtual volunteer meeting of "VCP Ambassadors" where passionate individuals come together to make a difference! As VCP Ambassadors, we believe in the power of community and volunteering to create positive change. In this interactive online session, we will discuss ongoing pr
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  • 2024 Cure VCP Disease Celebration
    2024 Cure VCP Disease Celebration
    Sat, Aug 10
    Fall Line Station
    Aug 10, 2024, 6:00 PM – 10:00 PM
    Aug 10, 2024, 6:00 PM – 10:00 PM
    Join us for a BBQ, Brews & Bingo Benefit!
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Patient Events
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