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Events
We host events for patients, families, and the research community. Additional information is available through our newsletters and social media.
Scientific Convenings

Thu, Mar 26Virtual EventTitle of Presentation: Targeting VCP in Inherited Retinal Dystrophies Presenter: Blanca Arango-Gonzalez, MD and Marius Ueffing, PhD
Wed, Jul 22AtlantaWe invite scientists, researchers, and patients to come together for Voices & Vision 2026, a premier summit dedicated to advancing VCP-associated multisystem proteinopathy (aka VCP disease) research and strengthening our community.
Patient and Family Events





2026 VCP International Scientific and Community Summit | Voices and VisionJul 22, 2026, 5:00 PM – Jul 25, 2026, 5:00 PM
2026 Biobank RoadshowVARIOUS DATES
Patient Events
No events at the moment
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