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Events
We host events for patients, families, and the research community. Additional information is available through our newsletters and social media.
Scientific Convenings

Thu, Sep 17Virtual EventTitle of Presentation: Arimoclomol is neuroprotective and ameliorates pathology in mouse and patient models of VCP disease. Presenter: Linda Greensmith, PhD
Patient and Family Events





European Virtual Happy HourSep 17, 2026, 12:00 PM – 1:00 PM


2026 Biobank RoadshowVARIOUS DATES
Patient Events
No events at the moment
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