Events

We host events for patients, families, and the research community. Additional information is available through our newsletters and social media.

Scientific Convenings

Living with Ambiguous Loss in Multisystem Proteinopathies: Genetics, Grief, and the Lived Experience of VCP Disease
Wed, Dec 03
Webinar
Join us for an insightful, 1-hour webinar where clinicians and a VCP disease community member will explore the genetics of MSPs, the emotional complexities of ambiguous loss, and real-world coping strategies to build resilience.
RSVP
2026 VCP International Scientific and Community Summit | Voices and Vision
Wed, Jul 22
Atlanta
We invite scientists, researchers, and patients to come together for Voices & Vision 2026, a premier summit dedicated to advancing VCP-associated multisystem proteinopathy (aka VCP disease) research and strengthening our community.
RSVP

Patient Events