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Events
We host events for patients, families, and the research community. Additional information is available through our newsletters and social media.
Scientific Convenings
Thu, May 23Virtual EventMay 23, 2024, 1:00 PM – 2:00 PMVirtual EventTitle of the presentation: Unravelling Cell Type-Specific Molecular Mechanisms in VCP Disease
Awareness and Fundraising Events
Sun, Jun 23AnywhereJun 23, 2024, 6:00 AMAnywhereJoin us anytime the week of June 23-29 as we turn "I CAN'T" into a "I CAN" MOVEment to cure VCP disease. The I CAN MOVEment is a great chance to highlight your challenges and show the world what you CAN DO! Our goal is to raise awareness and donations for research and patients.
Sat, Aug 10Fall Line StationAug 10, 2024, 6:00 PM – 10:00 PMFall Line Station, 567 Plum St, Macon, GA 31201, USAJoin us for a BBQ, Brews & Bingo Benefit!
Patient and Family Events
Multiple DatesMon, Apr 29https://us06web.zoom.us/meeting/register/tZApr 29, 2024, 8:00 PM – 9:00 PMApr 29, 2024, 8:00 PM – 9:00 PMJoin Cure VCP Disease's Chief Scientific Officer Dr. Armelle Pindon for this informal time to ask any scientific questions related to VCP gene variants and associated diseases. Learning more about the science behind VCP can empower you and others in our drive for a cure. Knowledge is power!
Multiple DatesWed, May 08https://us06web.zoom.us/meeting/register/tZMay 08, 2024, 8:00 PM – 9:00 PM EDTMay 08, 2024, 8:00 PM – 9:00 PM EDTCure VCP Disease Virtual Happy Hours are a great opportunity for our VCP disease community, from around the world, to connect monthly with one another and share life's challenges, tips, and triumphs due to the impact of this disease. There is no agenda and no drink is required. We look forward to se
Multiple DatesTue, May 21https://us06web.zoom.us/meeting/register/tZMay 21, 2024, 8:00 PM – 9:00 PM EDTMay 21, 2024, 8:00 PM – 9:00 PM EDTInviting all significant others and care partners of VCP disease patients to this unique Virtual Happy Hour. Sharing your experiences and showing your support can rejuvenate and ground all affected by VCP disease. We are in this together! There is no agenda and no drink required.
VCP AmbassadorsWed, Jun 05Online MeetingJun 05, 2024, 8:00 PM – Jul 18, 2024, 9:00 PMJun 05, 2024, 8:00 PM – Jul 18, 2024, 9:00 PMJoin us for our upcoming virtual volunteer meeting of "VCP Ambassadors" where passionate individuals come together to make a difference! As VCP Ambassadors, we believe in the power of community and volunteering to create positive change. In this interactive online session, we discuss how to giveback
Patient Events
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