top of page

Events

We host events for patients, families, and the research community. Additional information is available through our newsletters and social media.

Scientific Convenings

  • VCP Scientific Focus Group
    VCP Scientific Focus Group
    Thu, Jul 17
    Virtual Event
    Title of Presentation: Pathogenic VCP Mutation Disrupts Mitochondrial Function Through Permeability Transition Pore Modulation Presenter: Dr. Ludo Van Den Bosch
  • VCP Scientific Focus Group
    VCP Scientific Focus Group
    Tue, Aug 12
    Virtual Event
    Title of Presentation: Current Understanding of Childhood-Onset VCP Neurodevelopmental Disorder Presenter: Annelise Mah-Som, MD PhD

Patient and Family Events

Patient Events

Fundraising and Awareness

bottom of page