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Events
We host events for patients, families, and the research community. Additional information is available through our newsletters and social media.
Scientific Convenings
Thu, Jul 17Virtual EventTitle of Presentation: Pathogenic VCP Mutation Disrupts Mitochondrial Function Through Permeability Transition Pore Modulation Presenter: Dr. Ludo Van Den Bosch
Tue, Aug 12Virtual EventTitle of Presentation: Current Understanding of Childhood-Onset VCP Neurodevelopmental Disorder Presenter: Annelise Mah-Som, MD PhD
Patient and Family Events
Living With the Unknown: Understanding Ambiguous Loss in the Face of VCP DiseaseJul 24, 2025, 8:00 PM – 9:00 PM
Scientific Office HoursAug 28, 2025, 8:00 PM – 9:00 PM
Cure VCP Disease Biobank RoadshowVARIOUS DATES
Patient Events
Fundraising and Awareness
Energy One presents: 2025 Cure VCP Disease CelebrationAug 09, 2025, 5:30 PM – 10:00 PM EDTFall Line Station, 567 Plum St, Macon, GA 31201, USA
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