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Events

We host events for patients, families, and the research community. Additional information is available through our newsletters and social media.

Scientific Convenings

  • VCP Scientific Focus Group
    VCP Scientific Focus Group
    Tue, Aug 12
    Virtual Event
    Title of Presentation: Current Understanding of Childhood-Onset VCP Neurodevelopmental Disorder Presenter: Annelise Mah-Som, MD PhD

Patient and Family Events

Patient Events

Fundraising and Awareness

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