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EVENTS

PATIENT AND VCP FAMILY EVENTS

Upcoming Events

  • June 15, 2023 - VCP Scientific Focus Group
    June 15, 2023 - VCP Scientific Focus Group
    Jun 15, 12:00 PM – 12:05 PM EDT
    https://us06web.zoom.us/meeting/register/tZ
    Novel VCP Activators Reveal Phenotype-Activity Relationships Edward Lee, MD, Ph.D., Associate Professor at the University of Pennsylvania., Co-Director, Institute on Aging
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  • 2023 I CAN MOVEment
    2023 I CAN MOVEment
    Jun 18, 12:00 AM – Jun 24, 11:50 PM
    Virtual Fundraiser
    Join us as we turn "I CAN'T" into a "I CAN" MOVEment to cure VCP disease. It's a virtual Move-A-Thon that culminates the week of June 18-24.
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  • VCP Connections Conference - 2023 Family Gathering
    VCP Connections Conference - 2023 Family Gathering
    Jul 20, 6:00 PM PDT – Jul 22, 8:00 PM PDT
    Las Vegas, 301 E Fremont St, Las Vegas, NV 89101, USA
    Join us in Las Vegas for an awesome time of connection! The 2023 Family Connections Conference will focus on patient engagement and interactions with other participants.
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  • 2023 Cure VCP Disease Celebration
    2023 Cure VCP Disease Celebration
    Aug 12, 6:00 PM – 10:00 PM EDT
    Atlanta, 1465 Howell Mill Rd NW, Atlanta, GA 30318, USA
    Join us for great food, drink, fellowship, a fun auction, and chance drawing items at our annual Cure VCP Disease Celebration on August 12th at the Urban Tree Cidery in Atlanta, GA.
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  • September 21, 2023 - VCP Scientific Focus Group
    September 21, 2023 - VCP Scientific Focus Group
    Sep 21, 12:00 PM – 12:05 PM EDT
    https://us06web.zoom.us/meeting/register/tZ
    p97 R155H mutant motor neurons have disrupted lysosome homeostasis. Malavika Raman, Ph.D. Assistant Professor at the Tufts University School of Medicine.
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  • Oct 19, 2023 - VCP Scientific Focus Group
    Oct 19, 2023 - VCP Scientific Focus Group
    Oct 19, 12:00 PM – 12:05 PM EDT
    https://us06web.zoom.us/meeting/register/tZ
    Proteomic studies in VCP pathology toward the definition of disease markers and starting points for therapeutic intervention concepts. Andreas Roos, Ph.D.
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  • Patient Happy Hours
    Patient Happy Hours
    Time is TBD
    Zoom Link
    These Zoom meetings are a way to connect with VCP families around the world and share experiences. There is no agenda or drink required.
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  • Scientific Office Hours
    Scientific Office Hours
    Time is TBD
    Zoom Link
    Once a month, our Chief Scientific Officer, Dr. Armelle Pindon, hosts open office hours for patients and families to ask their scientific questions about VCP. You are welcome to join and chat or just listen. A zoom link is provided on our home page and facebook page.
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