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News & Updates
CZI Science in Society: Rare As One Network 2025 Meeting
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A Successful 2025 I CAN MOVEment
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Your Guide to Genetic Counseling With InformedDNA
A guide to better understanding the genetic counseling process with InformedDNA.
Welcome our New Board of Directors!
We are delighted to welcome Han C. Phan, MD and Jesse Vargas, PhD to Cure VCP Disease’s Board of Directors!
VCP Genetic Counseling Program in Partnership with InformedDNA
An overview of Cure VCP Disease Partnership with InformedDNA for genetic testing and counseling.
Announcing: A New Hope | Well-Being in Rare
A New Hope | Well Being in Rare will be offering access to genetic counseling and testing, educational programs, and mental health support.
Welcome Dr. Jordi DÃaz-Manera to the Cure VCP Disease Medical Advisory Board
Welcome our newest member to the Medical Advisory Board, Dr. Jordi Diaz-Manera
AFTD 2024 Educational Conference Recap
This is a recap of the 2024 AFTD Educational Conference hosted in Houston, Texas.
Introducing Dr. Zollie Yavarow: Our New Director of Scientific Engagement and Collaborations
Announcing Dr. Zollie Yavarow as Cure VCP Disease's New Director of Scientific Engagement and Collaborations
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