PRESS RELEASE: Cure VCP Disease & Genethon Partner to Advance VCP Gene Editing Program
Collaboration is first step in understanding if CRISPR-Cas technology can correct mutations in the VCP gene September 14, 2023, Warner...
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News & Updates
Breaking Down Barriers through International VCP Scientific Convenings
As we gear up for our next VCP Scientific Conference at Caltech on Feb. 22-24, we wanted to take a moment to reflect on the remarkable...
PRESS RELEASE: New Medical Recommendations for VCP Patients with Myopathy
May 5, 2023 We are thrilled to announce a publication in Annals of Clinical and Translational Neurology that offers provisional practice...
"We must not take for granted what our bodies CAN do NOW!"
I plan to ride my bike or walk each day (from this day forward) because I CAN... We must not take for granted what our bodies CAN do NOW!
"Not for tomorrow…but perhaps the day after!"
Hello, my name is Armelle, I don’t have VCP disease, but I fight for these patients every day. I have the honor and the luck to be the...
Refer your Doctor or Therapist to the VCP Medical Network
We need your help to identify all the doctors, practitioners and therapists who are currently treating VCP patients worldwide. You can...
VCP disease description now on MDA website
https://mailchi.mp/1485e97fe673/curevcpdiseasenewsletter17-217279
View the entire 2019 Patient & Caregiver Conference
https://mailchi.mp/271f8cf92a4e/newsletter01-200079
Appropriations request submitted to Congress
https://mailchi.mp/b59d34ef8fcb/newsletter01-180511
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