News & Updates

What to Expect at the 2026 VCP International Scientific & Community Summit

A full overview of everything attendees need to know for the 2026 VCP International Scientific & Community Summit

group of scientists in a conference room

Researchers, Clinicians, and Patients to Convene in Atlanta for Landmark VCP Summit

First-Ever Combined Scientific and Patient Community Conference Brings Together the Broad VCP Disease Research and Patient Community to Accelerate Progress Against a Rare and Devastating Disease ATLANTA, GA — July 22–25, 2026 — The 2026 VCP International Scientific and Community Summit will bring together scientists, clinicians, patients, and caregivers at the Hyatt Centric Midtown Atlanta for four days of cutting-edge science, patient-centered dialogue, and community buildin

Everything you need to know about the 2026 Cure VCP Disease Celebration

A full guide on what to expect at the 2026 Cure VCP Disease Celebration

Meeting in Munich: Why Bringing People Together Brings Us Closer to Answers

VCP disease advocacy at One Young World Summit in Munich as part of the AstraZeneca Young Health Impact Fellowship

three individuals standing on a stage, holding a jersey

Celebrating Dr. Firyal Ramzan at the 2026 Uplifting Athletes Young Investigator Draft

Overview of the 2026 Uplifting Athletes Young Investigator Draft

Firyal Ramzan Presented with a $20,000 VCP Research Grant from Uplifting Athletes and Cure VCP Disease

Firyal Ramzan from the University of Waterloo is among 10 rare disease researchers to be awarded a grant at Uplifting Athletes’ Young Investigator Draft on Jan. 31 at Lincoln Financial Field.

A Young VCP Researcher's Story: 'Our Work Isn't Abstract—It's Connected to Real People

"Our work isn't abstract—it's connected to real people waiting for answers." A young researcher shares how one conference transformed her approach to VCP science.

Introducing the VCP Family Registry

An FAQ about Cure VCP Disease's VCP Family Registry.