Get Involved
Donate Now
Your generous donations support our efforts to drive awareness about our rare disease and to facilitate partnerships with leading researchers and doctors. This includes awareness, education and research for VCP disease as well as operating expenses. Particular programs we support are our patient conference, VCP scientific conference, awareness and outreach campaigns, and grants for young investigators. You may donate by clicking the donate button.
A copy of Cure VCP Disease’s financial statements may be obtained by contacting us at: PO Box 6533, Americus, Georgia, 31709 or or by clicking here. Cure VCP Disease was formed in the state of Georgia for the purpose of driving efforts to cure diseases related to mutations of the Valosin Containing Protein gene. This includes the disease Inclusion Body Myopathy associated with Paget’s disease of bone and Frontotemporal Dementia (IBMPFD). The specific objectives of our organization are to provide global education and awareness of VCP diseases to doctors, researchers, industries, patients, caregivers and the general public.
Donate by Mail
You may donate by mailing a check to
Cure VCP Disease, Inc.
PO Box 6533
Americus, GA 31719
Volunteer
Join us in the effort to finding a cure and a treatment for this rare genetic disease. There are many ways to get involved. We need your help reaching patients and their doctors. You can help by requesting a free brochure for you or your doctor. We also need help writing grants, attending conferences, organizing fundraising campaigns, and advocating for our disease. Please fill out the sign-up form below or e-mail us at if you are interested in participating in anyway.
Start your own Fundraising Campaign
Some advocates have shown interest in participating in an event like a bike ride, golf tournament, or car wash.
Interested in starting your own fundraising campaign? It is easy with Network for Good's tool.
Contact us if you want to learn more about becoming an advocate or fundraising for Cure VCP Disease, Inc. Ideas for fundraisers are available here: NORD's A-Z fundraiser guide.
Donate Stock
You can now donate stock directly to Cure VCP Disease, Inc. For additional question, contact the treasurer or CEO of Cure VCP Disease, Inc.
eBay Charity
eBay Charity allows you to sell items online and donate a portion of your sales to Cure VCP Disease, Inc. You can edit the amount you are willing to donate per sale. Click the image below for more information and details and check out our YouTube page for instructional videos. Currently, available only in the USA.
Amazon Smile
Cure VCP Disease, Inc. participates in Amazon Smile. Amazon gives a percentage (0.5%) of your order to a charity when checking out through Amazon Smile. You will not be charged any additional cost by choosing to do your Amazon shopping this way. Consider electing Cure VCP Disease, Inc. as your charity of choice.
Corporate Matching
Corporate gift matching is a great way to increase the total amount donated if your company offers this option. Below are links to our corporation documents that you may need. Cure VCP Disease, Inc. is an IRS registered 501c (3) organization.
Financial Documents & Fundraising Statement
100% of funds go to Cure VCP Disease, Inc's ability to fund education and awareness efforts as well as research grants and clinical trial efforts. No funds are used for travel expenses. Officers and representatives of Cure VCP Disease are responsible for self funding their travel and personal expenses.