Cure VCP Disease

Mission Statement

Cure VCP Disease, Inc. was formed to drive efforts to cure diseases related to mutations of the Valosin Containing Protein gene.  This includes the disease Inclusion Body Myopathy associated with Paget’s disease of bone and Frontotemporal Dementia (IBMPFD).  The specific objectives of our organization are:

  1. to provide global education and awareness of VCP diseases to doctors, researchers, investors, patients, caregivers and the general public;

  2. to develop and maintain a global patient registry of VCP disease patients;

  3. to develop and maintain a fundraising vehicle to support awareness and education efforts;

  4. to collaborate with other global organizations and entities which are promoting a cure for diseases which have symptoms similar to VCP diseases;

  5. to sponsor, host and/or participate in events and activities that promote efforts to cure VCP diseases.

Board of Directors

Probably the most unique aspect of our Board of Directors is that a majority of us are afflicted with the VCP Gene mutation. Most of us are fighting the disease everyday. This gives every aspect of what we do more purpose and meaning as it directly affects as well as inspires us!

Nathan Peck
CEO

Nathan Peck, age 42, is Chief Executive Officer of Cure VCP Disease, Inc.  He was diagnosed with IBMPFD after his ...

  • LinkedIn - Black Circle
  • Twitter - Black Circle
Jeannie Macaluso
Secretary

It wasn't until almost two years ago when I went to Mayo that I got diagnosed with the VCP gene mutation. My brother ....

  • LinkedIn - Black Circle
  • Twitter - Black Circle
Allison Peck
Treasurer

A graduate of Georgia Tech with a Bachelor's Degree in Industrial Engineering. She started her career as a Manufacturing Engineer and Project Manager with ...

  • LinkedIn - Black Circle
  • Twitter - Black Circle
 
David Sweetman

Went to 12 different schools in 12 years in 2 foreign countries and 3 states. Educated in the US Navy as an Electronics Technician...

  • LinkedIn - Black Circle
  • Twitter - Black Circle
Eduardo
Pinheiro

I live in São Paulo - Brazil. I have been married for 29 years with Marilda, my friend, my partner in many fights and now, besides all this, my dedicated caregiver ...

  • LinkedIn - Black Circle
  • Twitter - Black Circle
Keith
Plimmer

My name is Keith Plimmer and I am 58 years old. I grew up in Hawaii and spent most of my adult life ...

  • LinkedIn - Black Circle
  • Twitter - Black Circle
Medical Advisory Board

Our organization is advised by some of the best clinical and scientific researchers who are working tirelessly to understand the VCP gene mutation.

Dr.
Ming Gou
  • LinkedIn - Black Circle
  • Twitter - Black Circle
Dr. Virginia Kimonis
  • LinkedIn - Black Circle
  • Twitter - Black Circle
Dr.
Chris Weihl
  • LinkedIn - Black Circle
  • Twitter - Black Circle