Cure VCP Disease
Mission Statement
Cure VCP Disease, Inc. was formed to drive efforts to cure diseases related to mutations of the Valosin Containing Protein gene. This includes the disease Inclusion Body Myopathy associated with Paget’s disease of bone and Frontotemporal Dementia (IBMPFD). The specific objectives of our organization are:
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to provide global education and awareness of VCP diseases to doctors, researchers, investors, patients, caregivers and the general public;
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to develop and maintain a global patient registry of VCP disease patients;
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to develop and maintain a fundraising vehicle to support awareness and education efforts;
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to collaborate with other global organizations and entities which are promoting a cure for diseases which have symptoms similar to VCP diseases;
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to sponsor, host and/or participate in events and activities that promote efforts to cure VCP diseases.
Board of Directors
Probably the most unique aspect of our Board of Directors is that a majority of us are afflicted with the VCP Gene mutation. Most of us are fighting the disease everyday. This gives every aspect of what we do more purpose and meaning as it directly affects as well as inspires us!
Nathan Peck
CEO
Nathan Peck, age 42, is Chief Executive Officer of Cure VCP Disease, Inc. He was diagnosed with IBMPFD after his ...
Jeannie Macaluso
Secretary
It wasn't until almost two years ago when I went to Mayo that I got diagnosed with the VCP gene mutation. My brother ....
Allison Peck
Treasurer
A graduate of Georgia Tech with a Bachelor's Degree in Industrial Engineering. She started her career as a Manufacturing Engineer and Project Manager with ...
David Sweetman
Went to 12 different schools in 12 years in 2 foreign countries and 3 states. Educated in the US Navy as an Electronics Technician...
Eduardo
Pinheiro
I live in São Paulo - Brazil. I have been married for 29 years with Marilda, my friend, my partner in many fights and now, besides all this, my dedicated caregiver ...
Keith
Plimmer
My name is Keith Plimmer and I am 58 years old. I grew up in Hawaii and spent most of my adult life ...
Medical Advisory Board
Our organization is advised by some of the best clinical and scientific researchers who are working tirelessly to understand the VCP gene mutation.