PATIENT POWERED RESEARCH OPPORTUNITIES
Becoming a brain donor & the process of brain donation for research could help advance the science into our disease, IBMPFD / VCP Disease. The legacy of donation offers future generations the possibility of improved health.
The University of Maryland Brain and Tissue Bank gratefully accepts brain and other tissue donations from individuals with neurologic, development, movement and psychiatric disorders as well as from individuals with none of these underlying diseases to serve as unaffected controls. Our researchers have worked with the NIH and the University of Maryland to establish a process so of ensuring that donations are properly collected and stored so that each donor's gift aids the advancement in VCP research.
Preregistration simplifies and speeds the process of tissue recovery when death occurs. If you choose to participate, be sure to denote "VCP Disease" in preregistration and collection.
Over 50 unique biosamples are available at the Corielle Institute for research purposes. LCL, Fibroblast, and DNA samples are currently available at Corelle for researchers interested in IBMPFD / VCP Disease.
These donations have been graciously donated in the past and may be requested directly from Corielle.
Individual universities also have patient biosamples stored at their individual laboratories. If the Corielle repository does not meet your current research needs, any researcher may contact Cure VCP Disease directly and our organization may be able to facilitate introductions between researchers.