We are excited to invite you to participate in an innovative research study focused on VCP disease, conducted in partnership with the Chan Zuckerberg Initiative's Rare As One project.
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This five-month study aims to support and empower individuals living with VCP disease by helping them better understand their symptoms through cutting-edge technology.
As a participant, you will receive:
A complimentary Oura ring
A smartwatch
A MIR Smart One Spirometer
Access to specially designed smartphone applications
You'll have the unique opportunity to gain valuable insights about your personal health experiences while contributing to groundbreaking research. Additionally, you'll be able to collaborate directly with our research team to help design the study app experience.
You may be eligible to participate if you:
Are 18 years or older
Have a clinician
Confirmed pathogenic VCP mutation or family history of VCP disease
Reside in the United States of America
We value your time and contribution to this important research, and compensation will be provided to all study participants.
If you are interested in joining this innovative study or would like to learn more, please contact Emma Karlin at emma@4youandme.org
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Your participation could help advance our understanding of VCP disease and potentially improve the lives of others affected by this rare condition.