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News and Updates

Announcing: A New Hope | Well-Being in Rare

Announcing: A New Hope | Well-Being in Rare

Announcing: A New Hope | Well-Being in Rare

Feb 25

Dr. Jordi Diaz-Manera

Dr. Jordi Diaz-Manera

Welcome Dr. Jordi Díaz-Manera to the Cure VCP Disease Medical Advisory Board

Feb 20

AFTD 2024 Educational Conference Recap

AFTD 2024 Educational Conference Recap

AFTD 2024 Educational Conference Recap

Feb 5

Introducing Dr. Zollie Yavarow: Our New Director of Scientific Engagement and Collaborations

Introducing Dr. Zollie Yavarow: Our New Director of Scientific Engagement and Collaborations

Introducing Dr. Zollie Yavarow: Our New Director of Scientific Engagement and Collaborations

Sep 11, 2024

BBQ, Brews & Bingo - 2024 Cure VCP Disease Celebration

BBQ, Brews & Bingo - 2024 Cure VCP Disease Celebration

BBQ, Brews & Bingo - 2024 Cure VCP Disease Celebration

Aug 14, 2024

Everything you need to know about the 2025 Cure VCP Disease Celebration

Everything you need to know about the 2025 Cure VCP Disease Celebration

Everything you need to know about the 2025 Cure VCP Disease Celebration

Jul 8, 2024

Dr. Eileen Lynch Wins 2024 Young Investigator Award

Dr. Eileen Lynch Wins 2024 Young Investigator Award

Dr. Eileen Lynch Wins 2024 Young Investigator Award

Feb 21, 2024

PRESS RELEASE: Cure VCP Disease Announces Collaboration With NCATS For The Creation of 3D Muscle Tissue Models For VCP Disease

PRESS RELEASE: Cure VCP Disease Announces Collaboration With NCATS For The Creation of 3D Muscle Tissue Models For VCP Disease

PRESS RELEASE: Cure VCP Disease Announces Collaboration With NCATS For The Creation of 3D Muscle Tissue Models For VCP Disease

Feb 8, 2024

PRESS RELEASE: Cure VCP Disease, Inc. Awarded $25,000 Muscular Dystrophy Association Advocacy Collaboration Grant

PRESS RELEASE: Cure VCP Disease, Inc. Awarded $25,000 Muscular Dystrophy Association Advocacy Collaboration Grant

PRESS RELEASE: Cure VCP Disease, Inc. Awarded $25,000 Muscular Dystrophy Association Advocacy Collaboration Grant

Feb 1, 2024

PRESS RELEASE: Cure VCP Disease, Inc. & Uplifting Athletes Present Gene Therapy Fellow Dr. Eleonora D’Ambrosio With $20,000 Research Grant

PRESS RELEASE: Cure VCP Disease, Inc. & Uplifting Athletes Present Gene Therapy Fellow Dr. Eleonora D’Ambrosio With $20,000 Research Grant

PRESS RELEASE: Cure VCP Disease, Inc. & Uplifting Athletes Present Gene Therapy Fellow Dr. Eleonora D’Ambrosio With $20,000 Research Grant

Jan 11, 2024

Celebrating your support - see our collective impact!

Celebrating your support - see our collective impact!

Celebrating your support - see our collective impact!

Nov 11, 2023

What Does It Take To Find A Cure?

What Does It Take To Find A Cure?

What Does It Take To Find A Cure?

Nov 7, 2023

PRESS RELEASE: Cure VCP Disease & Genethon Partner to Advance VCP Gene Editing Program

PRESS RELEASE: Cure VCP Disease & Genethon Partner to Advance VCP Gene Editing Program

PRESS RELEASE: Cure VCP Disease & Genethon Partner to Advance VCP Gene Editing Program

Sep 14, 2023

Breaking Down Barriers through International VCP Scientific Convenings

Breaking Down Barriers through International VCP Scientific Convenings

Breaking Down Barriers through International VCP Scientific Convenings

Aug 26, 2023

PRESS RELEASE: New Medical Recommendations for VCP Patients with Myopathy

PRESS RELEASE: New Medical Recommendations for VCP Patients with Myopathy

PRESS RELEASE: New Medical Recommendations for VCP Patients with Myopathy

Jul 31, 2023

Ryan Peck - Kicking off his support for VCP disease research

Ryan Peck - Kicking off his support for VCP disease research

Ryan Peck - Kicking off his support for VCP disease research

Jun 20, 2023

Completion of iPSC Models

Completion of iPSC Models

Completion of iPSC Models

Jun 5, 2023

Saluting and honoring an exceptional graduate, Ajay Patel

Saluting and honoring an exceptional graduate, Ajay Patel

Saluting and honoring an exceptional graduate, Ajay Patel

May 30, 2023

An 'Aha' Moment, A Moment of Inspiration

An 'Aha' Moment, A Moment of Inspiration

An 'Aha' Moment, A Moment of Inspiration

May 24, 2023

"We must not take for granted what our bodies CAN do NOW!"

"We must not take for granted what our bodies CAN do NOW!"

"We must not take for granted what our bodies CAN do NOW!"

May 8, 2023

Image by Sara Kurfeß

Image by Sara Kurfeß

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