CURE VCP DISEASE, INC.

Support Groups

​Please reach out to us if you are affected by this disease in any way.  No one should have to cope with this disease alone.  We regularly host patient and caregiver calls as well as host support groups online.

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1.  Join the VCP Disease group on Rare Connect  www.rareconnect.org

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2.  For patients and caregivers, there is a closed facebook group.  This group is set-up to share dietary suggestions, mobility aids, as well as stress relief.  

3.  For caregivers, the myositis association has invited IBMPDF caregivers to join their caregivers only facebook page.

Equipment Resources

These slides were presented at the 2019 Cure VCP Disease Patient & Caregiver Conference and details accessibility equipment that our patients reported as useful.

Exercise Resources

Below are resources for exercise and physical therapy. "VCP Exercise 101" is a custom presentation for VCP disease by Dr. James Wymer.

Genetics Home Reference

This links to the IBMPFD site on Genetics Home Reference.  The website provides information for the general public about the effects of genetic variation on human health. Genetics Home Reference is a consumer health website from the National Library of Medicine, which is part of the National Institutes of Health, an agency of the U.S. Department of Health and Human Services.