CURE VCP DISEASE BIOBANK
Joining the VCP Biobank puts patient samples in the hands of researchers to learn more about the disease.
Cure VCP Disease Biobank
Having a bank of blood and tissues from VCP patients and their family members is essential to advancing research that leads to treatments and cures for VCP disease. By understanding the donation process and considering becoming a donor, you can make a profound contribution to scientific progress.
Cure VCP Disease has partnered with COMIBINEDBrain to collect blood and tissue from patients and their family members. These samples are made available to researchers through our Biorepository.
Interested in registering?
Important Information
⚠️ 2026 collection spots are limited and will be offered on a first come, first served basis — register today!
Who: We are seeking the following participants to provide samples on an annual basis:
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VCP-positive individuals — anyone diagnosed with VCP disease or IBMPFD, either through a positive genetic test or a clinical diagnosis by a physician
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At-risk family members — individuals with a VCP-positive parent who have not yet received a positive diagnosis
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VCP-negative family members — unaffected relatives of a VCP-positive individual, preferably siblings, to serve as controls
What:
COMBINEDBrain and Cure VCP Disease are collecting blood samples to be stored in the Cure VCP Disease Biobank. These samples are made available for select biomarker projects and other approved research initiatives. Participants are asked to provide samples on an annual basis.
Where:
COMBINEDBrain is hosting collection events at locations across the country this year, with Cure VCP Disease coordinating participant registration. Please review the list of locations below to find the site most convenient for you.
How:
Complete the registration form below and select the collection location closest to you. If you have questions or would like to learn more before registering, please indicate that option in the form and we will reach out to you.
