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Image by National Cancer Institute

 A THREE YEAR CAMPAIGN FOR VCP FAMILIES

We are raising $2.08 million over three years to upgrade the research tools, fund the science, and support the families that will bring the first treatments to people living with VCP disease.

WHY NOW?

We are at an inflection point.

Science, technology, and the collective voice of our community are converging. Our registry, biobank, and natural history study are exactly where we can have an outsized impact and drive the development of a therapy.

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Forward Together is how we turn that momentum into treatments.

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Patients, families, researchers and care providers together in Atlanta in 2026

$125K

Raised at our closing celebration, our running start

155

Participants in our Global Patient Registry

50+

Labs in our Collaborative Research Network

Four Pillars. One Goal.
The Roadmap to a Cure.

Cure VCP Disease has developed a research roadmap and investment strategy with the goal of discovering the first treatments for VCP disease. Every gift to Forward Together powers all four pillars at once. Here is how the campaign comes together over the next three years.

Patient

Powered Research

$250,000

12% of GOAL

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Upgrade our Patient Registry, expand the BioBank, and get our community ready for clinical trials.

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Collaborative Research Network

$415,000

20% of GOAL

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Our annual scientific conference and shared research infrastructure, so no VCP scientist works alone.​

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Strategic

Research

Fund

$900,000

43% of GOAL

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Our inaugural fund for biomarker discovery, therapy development, shared disease models, and Young Investigator Grants.

Patient Support and Education

$515,000

25% of GOAL

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Educational resources, peer support, patient travel stipends, and genetic counseling for families.

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With support from patients and researchers worldwide, the Cure VCP Disease team has united research and empowered patients, giving a voice to those who have suffered in silence.

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In a fight against time, Cure VCP Disease Inc. has put the world on notice: “It’s Our Time to Fight Back.”

NATHAN AND ALLISON PECK, FOUNDERS

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Ways to give

Cure VCP Disease is seeking philanthropists who want to see the impact of their generosity firsthand. 

 

Give online

One time or monthly gifts

Pledge over
3 years

Spread your commitment across the campaign

Stock and
DAF gifts

We can provide transfer instructions and our EIN

Tributes & Planned gifts

Honor someone you love

Bequests, trusts, and life insurance

Colorful Lab Glassware

Researchers, clinicians, patients, and caregivers, moving toward the first treatments for VCP disease. Join us.

Questions about a gift?

Contact Brandon Feldt, Development and Partner Relations

brandon@curevcp.org

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